A baby born in Texas lacked an organ most people don’t think about: skin. At birth, baby Ja’bari’s chest, chin and head were fused together, which caused serious breathing problems. But he lacks skin on much of his body, with the exception of his head and parts of his legs.

For the mother,  Priscilla Maldonado, it was the most devastating moment when the doctors wrapped her baby soon after birth and took him away for further care.

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Doctors at the Methodist Hospital in San Antonio, Texas, said her son suffers from a rare genetic disorder in which babies are born without skin or sometimes even bone on their scalps. Doctors also say that the baby may be suffering from epidermolysis bullosa (EB). EB is an autoimmune disease that causes the skin to become fragile.

According to The Washington Post, she and her husband were advised to take their newborn home, make him comfortable and let him die. But “he’s here for a purpose,” said Priscilla Maldonado who was not ready to give up on her son yet.

A baby born in Texas lacked an organ most people don’t think about: skin. At birth, baby Ja’bari’s chest, chin and head were fused together, which caused serious breathing problems. But he lacks skin on much of his body, with the exception of his head and parts of his legs.

For the mother,  Priscilla Maldonado, it was the most devastating moment when the doctors wrapped her baby soon after birth and took him away for further care.

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FACEBOOK

Doctors at the Methodist Hospital in San Antonio, Texas, said her son suffers from a rare genetic disorder in which babies are born without skin or sometimes even bone on their scalps. Doctors also say that the baby may be suffering from epidermolysis bullosa (EB). EB is an autoimmune disease that causes the skin to become fragile.

According to The Washington Post, she and her husband were advised to take their newborn home, make him comfortable and let him die. But “he’s here for a purpose,” said Priscilla Maldonado who was not ready to give up on her son yet.

Ja’bari was moved to Houston last week after Medicaid reversed a decision and approved the medical transfer.  He has already started gaining weight and is doing much better for now.

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Maldonado said that her son will require additional surgeries to break down scar tissue and graft skin that is being grown in a lab, reports The Washington Post.

His parents both work at Taco Cabana and have set up a GoFundMe page. On the page of her son she wrote: “each day he is fighting to live on this Earth.”

[“source=indiatimes”]